Monday, February 12, 2018

Kayson strong as an Eagle Days 19 and 20

Wednesday 2-7-18 and Thursday 2-8-18
He started moving his left arm!!!!  Reached up slowly to scratch his face!  Music therapy came again, he really seems to enjoy that!  PT took him to the gym, they sat him (supported) in front of a big mirror and he wrote scribbles on it with a dry erase marker.  They stood him up fully supporting him for a brief time.  He's so worn out after PT.  Marmie stayed the night with him so we could get some sleep and some laundry done.  The night nurse washed his hair and massaged his head.  He stuck his tongue at the doc.  We also got him an iPad to help with hand-eye coordination and hopefully communication.  He chewed on a chew stick on both sides for his speech therapist.  He also threw a huge fit for like 30-40 min.  nothing was calming him and he was kicking and fussing.  I had to step out and cry.  Then I couldn't stop.  Its so hard.  He did finally calm and slept that night but I stayed with him and didn't get sleep.  My brain wouldn't quiet, so I prayed.

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