Monday, April 23, 2018

Kayson Strong as an Eagle ~ Rotational angiogram

We arrived in Dallas Tues night and got settled into RMH.  We got the babies bathed, we had Kalani and Kayson (of course, lol) with us.  About ten o clock Kayson decided he was hungry.  He really hadn't ate much dinner, at which he lost a tooth eating a bread!  :) He wasn't supposed to eat anything after midnight so we decided a snack was in order.  Then we all tried to get some sleep.  Kayson wanted him and Kalani to sleep in one bed but she wasn't cooperating so then he decided that daddy and Kalani needed to be in one bed and he needed to sleep with his mama.  lol.  I suspect he didn't want to be all alone in an unfamiliar big bed.  :)  He got his way, lol.  Then we were up early for a full day at the hosp.  First an appt with hematology.  He had some labs that were flagged but nothing that they were worried about and no followups with them.  This was prob the best news of the day.  sigh.  Then onto radiology for his rotational angiogram.  I was so scared bc they were going to take his collar off and turn his head.  I understand needing to know if he needs surgery and find out if his neck is still pinching his artery but that doesn't make it any less scary.  They took him back, he didn't cry this time and we grabbed some lunch.  Shortly after we got back to the waiting area, the doc came out and said he did great and he was in recovery sleeping, they would keep him sedated for a few hour bc he needed to lay still but she also told us that he was still pinching his artery and would need surgery. Not the news we really wanted to hear.  Also means that if he wasn't in the neck collar to restrict his movement, it would be very likely he would've already had another stroke.  The doctors also keep talking about how massive his stroke was and that makes me think they think it is even more crucial that he does not have another one.  It is all so very overwhelming.  Then more waiting.  Oh my, baby girl was ALL over the place!!  wondering off down the hall, all over the waiting area, wearing us out!  We did find a playground and let her play out there for a bit.  She wasn't going to take a nap for us bc she had taken an early nap while we were waiting with Kayson bc we had been up so early!  Then we finally got to see baby boy!  He was waking up but still very sleepy but smiled at us and was glad to see us.  He got to have a popsicle and they gave him a nerf gun.  Then his neurology doc came to see him.  They got him up to walk, he was still very wobbly from the sedation.  This doc also confirmed the need for surgery.  Then they said we could leave so we headed back to RMH, it was already after 6!  When we pulled in and parked, Kayson threw up the first time.  They had said he might and it was normal if he did once or twice and that he would still be sleepy and needed to rest.  So we got him up to our room and took turns going down to the family kitchen to get dinner.  However he wouldn't stop throwing up, so Glenn called the number they gave us and they told us to bring him to the ER.  We arrived about 9.  He was still throwing up.  We were scared and he felt so bad and baby girl was so tired and so were we, it had already been a long day.  A friend came and stayed in an empty waiting room with baby girl!  We were so grateful!  They took us to a room, the same room we were in the very first night we arrived in Dallas!  They gave him some zofran, said he would need fluids and called his neuro doc who wanted an MRI done.  That came back good.  awhile after the zofran, he had a popsicle and then some crackers but his neuro doc wanted him observed overnight so they admitted him.  I took baby girl back to RMH for some rest but it was after 3 am before we got there.  Glenn stayed with kayson and said they got to a room about 4.  He did well, slept, ate breakfast, neuro doc said he was nervous bc they had turned his head but he could be discharged that afternoon.  We got to leave the hosp around 4 after a trip to the trains and to the gift shop to see if they had PJs bc Kayson was leaving in hosp gown bc he threw up on his clothes and we didn't have any others.  We made it back to RMH and crashed, we slept through dinner, lol and had to eat leftovers.  Then we left for home friday am.  Kayson was so excited to be home and we were so glad he was alright.  Now we wait for surgery date.