Monday, February 3, 2020

Kayson Strong as an Eagle ~ 2 years

As I sit here watching my miracle boy do his math homework all on his own, I am reflecting on his journey.  Two years ago today, he was still in PICU, still not fully awake, not talking, not walking, my daddy had brought all the siblings to visit and it was so great to see them all.  It was such a scary time for us all and my heart hurt at seeing him just laying there in that hospital bed and not being with my other precious babies during the week.  That was such a long 7 weeks away from all.  Today he is thriving in school, just went to read chap 5 of his book to his daddy for school.  Baseball season will start this month and he is so excited to play again.  He moves up to kid pitch this year.  I am a bit freaked out at the idea of another kid throwing a ball at my boy but I am assured he cannot live in a bubble and all will be fine.  LOL  He is up to his full dose on his new migraine meds.  Doc said it could take up to a year to really notice if they are working well but I did notice the other day that he got a bad migraine, right at dinner time, he tried to eat, he did take Tylenol and ibuprofen, they said he needs both when he gets a headache, then he said his stomach was upset, I put peppermint oil on his tummy.  He laid on the couch and was fussing bc of the pain and that scared me but then he fell asleep for a little while and was some better when he woke.  A little while later he went to bed for the night and was just fine the next am.  Any other headache lately, that didn’t have to be even that bad, would have had him throwing up, resulting in an ER trip.  This time we avoided the ER!  PTL!  I hope hope hope that is a sign that the new meds are working.  The doc said he will prob still get the headaches with throwing up and an ER trip but the hope is to cut the ER visits to once or twice a year instead of almost every other month.  Precious boy is still as silly as ever!  And that red hair!  So so so thankful for his life and his incredible story.  He is now gathering everyone for night night prayers, he loves doing night night prayers and I love his heart!