Wednesday 3-7-18 and Thursday 3-8-18
Baby boy is in underwear today! Also they took his wheelchair back! We had our care meeting today and they said we can go home friday!!!!!!! I may or may not have actually done a happy dance in the hallway! HOME!!!!!!! They also confirmed that he will need dyslexia testing. This was visible pre-stroke, I was in the process of trying to figure out why he wasn't reading or counting too high yet although he is so smart and halfway through 1st grade. He will continue therapies outpatient, OT (occupational), PT (physical) and Speech. Kayson made pizza with childlike cooking group. Its so neat they do all these cool things with the kids. We went to Northpark mall again looking for a new carseat for Kayson. They said he needs a 5 point harness. I really like browsing that mall, I may actually miss it! lol Even if I can't even dream of affording half the stuff their! We walked into Neiman Marcus. Oh my those prices! $2000 shoes, $300 dollar little girl ballon dress and an oh my goodness beautiful $26,000 mirror!!!!!!! We didn't find a carseat but we did have fun! :) However they said Kayson was so sad the whole time we were gone. He really is so ready to be home! He made it clear he didn't want us to go together to find him a seat. So I posted asking if anyone wanted to go looking with me and instead got recommendations for a seat, looked it up online and really liked it, wanted one but needed it local, no time to ship, and another friend found one online that was in stock at a local store! So Glenn went and bought it! Such a blessing, another look at God's grace. The Acadian Operations Manager also paid us an apology visit! That was just so nice and he also let us know they looked into the situation and someone in dispatch didn't do what they should have and were supposed to have been picked up in twenty minutes! He said they have such a good relationship with OCH and he wanted to personally apologize. Wow! Our (Kayson's) (lol) nurse came in ad went over discharge papers with us in preparation for the next day. So many appointments! Learned he also had seizure meds ordered for just in case. Thankful he hasn't had one but just having the meds is scary. This was also the first time I saw all his diagnoses in print. That was something. Feelings I wasn't expecting. Baby boy has been through so much, has survived so much! Oh thank you Jesus again that he is still with us!
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