Thursday, January 25, 2018

Kayson Strong as an Eagle Day 2

Sunday 1-21-18
After arriving at Children's Medical Center we were checked into the ER.  So much of it feels like a big blur still.  It got a bit scary in the ER, he started breathing irregular but his O2 sats were still high.  They moved us up to an ICU room about 330 am.  Kayson was kinda in and out of it.  He would cry out and then rest a bit and cry again.  His breathing would act like he was holding his breath some but his oxygen stayed high.  When he breathed deeper, he would cry in pain.  We cried too.  He wanted to go home but he hurt so bad.  They had to check his eyes and reflexes every hour.  He was still able to talk but some of what he said didn't make sense, we weren't sure what he was talking about.  They noticed his left side getting weaker.  Then they started prepping him for MRI.  I don't even know what time things happened, everything was such a blur.  There were so many questions to answer and consents to be signed and people everywhere!  Doctors and nurses and they were everywhere.  They got him sedated, they got a drain in his brain, they had all kinds of monitors hooked up and then they took him down.  Then we waited and waited and waited and waited.  People came, I don't remember who exactly or when.  Then we were called down to MRI to sign consents for another tests and told it looked like he had a stroke.  More waiting.  When he finally made it back to his room and we were called back to speak with the docs, there were no less than 15 people in his room, setting things up, hooking him to this and that and the doc teams waiting for us.  Andy and Margaret had come back up to the hospital and came back with us.  It was at this point that we were told that our baby boy our precious, sweet, so silly baby boy did not have a tumor but had had a stroke, which is very rare in children.  Then they went on to say that his was even rarer bc it was caused by a blood clot, caused by a tear in his artery, caused by his spine and they don't know why this happens bc it shouldn't happen.  Children are supposed to be resilient, the doc even said children should even be able to fall out of trees and be fine.  There was no way to know it would happen, no way to stop it, nothing we could have done.  They had met with a team of docs and discussed in detail their options.  They were putting him in a medical coma for five days.  To try to prevent further swelling and further damage, protect the brain stem.  So many tears, so many questions, so much fear!  His neurologist was called in from home and hurried up here in his sweats, he told us NOT to stay at hospital overnight, he will be sleeping and out and we needed to go and get some rest and "sleep in the same bed"  I didn't know doctors said such things.  lol  We had a small army of people here with us and they held us while we cried.  A lady from church even made all the phone calls to alert our family and friends bc I couldn't deal.  I almost lost my legs when they said if we had waited to bring him in, he wouldn't have made it.  They said he actually stopped breathing twice early that am before the MRI.  Now my little boy is just laying there.  and we wait.  Another couple paid for us a room close to the hospital.  It was good to get some sleep, still many tears and much fear, it was so hard to leave but I hadn't slept at all and Glenn only a few hours like 2.

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