Thursday 9-13-18
And we find ourselves with another trip into Dallas! This one on a school day and guess what? Kalani did not sleep well, so its another tired trip in! Why does lack of sleep always seem to accompany Dallas trips for one reason or another?!? lol We are up early to see the older 4 off to school and Daddy is off this week so he is keeping Kalani for the day. She got upset when we left though, she kept saying, "go, go" lol Oh how I hate the Dallas traffic. It scares me and I'm so nervous about when I have to drive in bc Glenn's not planning on coming to every appointment soon. The appointments so far have been pretty significant and ones He didn't want to miss but we think soon the appointments will pretty much be just be follow ups to check on baby boy's progress and not so crucial for Glenn to come so he can stay home to work. We have been very blessed and are very thankful that he has been able to get off for everything so far! We made it to the hospital and to X-rays, they took his collar off this time for X-rays and had him move his head up and down. Then we went up to his neurosurg appt. Doc said X-rays are all the same and thats what we want and that Kayson could remove his collar! permanently! OH MY! Did you read that?!? Y'all this is BIG! Baby boy got to take his collar off and doesn't have to put it back on!!! Hey, he actually still has a neck! I almost forgot what it looked like! Now we have some time to kill before appt 2. That of course means a stop at the trains, I can't stop looking at baby boy, he looks so big without the collar! Then a trip into the gift shop and a water basketball game for celebration. He has been wanting one of those water game things for a while now. So of course it had to be opened and filled with water and then in the hallway we saw his neurologist! He was so excited for Kayson having no collar. I told him I keep wanting to rub Kayson's neck and he said, "Don't be weird, mom!" LOL He's a great doc! We also thanked him for referring Kayson to make-a-wish and told him we just found out that Kayson qualifies for a wish! Later on in the car, Glenn and I were talking about the wish and Kayson was on his iPad so we didn't know he was listening and I jokingly told Glenn that Kayson has wished to see a polar bear, bc you know, SNOW! LOL and Kayson says, "When, mama, when did I wish for that?!?" LOL oops, I got caught! Walking out of the hospital we noticed a smiley sticker on the floor and baby boy found a dime. Also, I cried, I'm really not sure why, so many emotions all wrapped up in the collar removal I guess. We found a Cicis for lunch, then onto the second appt with psychiatry. No changes there, everyone is satisfied that the intuniv is helping and working. Both docs want follow ups in dec so unless something changes, we only have one dallas appt in oct, that's a first since the stroke! and NO appts in Nov!!! That's just an amazing feeling! Weird too though and a bit scary if that makes any sense. Then we made is home and daddy had cleaned for us and done laundry all while watching Kalani! So touched! and thankful!
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