Monday, July 23, 2018

Kayson Strong as an Eagle ~ follow ups

Thursday
6-28-18
I didn't sleep well last night and was up early to take Chris to practice.  Glenn was sleeping as much as he could since he worked till 3 am!  We had apple sandwiches for breakfast.  Those are so great, just apple slices and PB.  YUM!  Then we headed into Dallas with baby boy.  This is a day trip this time, no overnight.  We left with time to get there but then GPS took us a different way bc of construction and we were a bit late but still got there and was able to see the doc.  She was happy with his physical progress.  We are all so very thankful for how far he has come!  She did tell us that the behaviors we are concerned about and have started seeing are consistent with traumatic brain injuries.  He may need some counseling.  She wants to see him again in a few months.  Then we went next door to Jimmy Johns for lunch.  I love their sandwiches so much.  :)  Baby boy always has one with cheese, thats all, just cheese.  lol  Then, we headed home.  I'm so tired!  When we got home, Kirsten had cleaned Kayson's room for him and organized some of his things on a shelf I had just got cleared for him, he was so excited!

Monday
7-2-18
Dallas again, I didn't sleep well again, this seems to be a recurring issue.  :( This time it'll be an overnight trip.  We made a Starbucks stop.  yum!  This time we made good time and made it to the hosp a bit early so we grabbed some lunch.  Then we saw his surgery doc.  His appt went good, his incisions look good.  Kayson did almost cry once when the doc said he couldn't have a bath till friday, he was hoping he could have a bath tonight with one of his bath bombs and his doc caught his tears and asked why, then asked if he didn't like showers so we told him that Kayson usually has baths and isn't fond of showers so he said Kayson could sit in a bath as long as he didn't soak his neck yet and baby boy was excited about that!  He wants to see Kayson again in 6 weeks.  Then we checked in at our hotel.  We tried a new hamburger place for dinner and then found a rolled ice cream place.  That was neat!  Kayson got his bath with his bath bomb.  This one was a bday one and left sprinkles in the tub, lol and his prize was a little plastic donut.  Then we rested before bedtime.

Tuesday
7-3-18
Up early to get breakfast and check out of hotel and get to his neurology appt on time.  He called Kayson miraculous!  However he does want him evaluated by a psychiatrist.  We told him some more about all our family has been through in Kayson's young life before the stroke and he seemed a little in shock.  He did say we had a strong marriage.  He wants to see Kayson again in Jan.  So far not a month has gone by that we have haven't been to dallas.  Its seems to be averaging about twice a month.  whew.  Its a lot.  Then we headed home.  We actually got home in time for lunch and it was already made, pizza, yum!  Marmie had spent the night with the other kids and brought the pizza.  Yay, Marmie!  :)  Then we had a nap with baby girl.  After Glenn and I had our date night.  Dinner and a movie.

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